DOCTOR GIVES LECTURES TO RAISE PUBLIC AWARENESS OF TOURETTE'S SYNDROME|妥瑞兒易被誤解 妥瑞大使赴校園開講

In general, the prevalence rate of Tourette Syndrome is 1% in the world, but the rate in Taiwan is only 0.5%. As a result, many people don't know much about it and the patients might be misunderstood or even bullied. Over the past two years, Dr. Hsueh Chang-wei, who has years of experience in the treatment Tourette's, has invited college students with Tourette's to give lectures on campuses, hoping to raise public awareness. ==NS== Knock the glass, knock the table. In the classroom, Kao Wei-Hang, a college freshman aged 18, showed the school principal and teachers how he suffers from Tourette's. When he entered middle school, he became out of control of behavior and would involuntarily destroy stuff, burst out offensive words. Kao was very fearful before he has been diagnosed with Tourette's. ==KAO WEI-HANG, Tourette's== I was worried if my behavior offended classmates, and how people look me. When I paid more attention to my worries, symptom became more serious. ==LI KAO-YAN, mother of Kao Wei-hang== Being parents, we need to stronger enough and to stand by him. Also, to face the problems and his conditions in the future. But we never give up. According to the record of Taiwan Tourette Family Association, there are about 100 thousands of Tourette's, one among every 200 people. The prevalence rate is very high but only a few people know it. As a result, children with Tourette's are easily misunderstood, unfairly treated, and even being bullied. In order to help people know about Tourette's, for more than two years, specialist Doctor Hsueh Chang-wei has held lectures on campus and let patients share their experiences. ==HSUEH CHANG-WEI Director of Pediatrics, Landseed Hospital== I hope to make these college students with Tourette's seed teachers, namely the ambassadors of Tourette's. Then they can go to many schools and give speeches. ==WEI JUI-WEN Principal, Ruei Siang Elementary School, Daxi District, Taoyuan City== Let's ignore some of their shoutings, and let them study more comfortably and happily in this environment. Doctor Hsueh Chang-wei pointed out that the worst pain for the Tourette's is not physical movements or strange sounds they make but people's misunderstanding and looking them as weird. TRANSLATED BY：EMA FU 妥瑞氏症的盛行率大約1%，在台灣則是大約每200人就有1人患有妥瑞症，但很多人不了解妥瑞氏症，也因此妥瑞孩子常遭到誤解甚至霸凌。二年多來，長期從事妥瑞症行為治療的薛常威醫師，帶著妥瑞大學生走進校園現身說法，希望藉此更多人認識妥瑞症。 ==NS== 11敲玻璃 敲桌子 在教室裡，和校長老師們分享心情與遭遇，今年18歲、就讀大一的高偉航，國中時對於自己會不自主破壞東西，還會罵髒話，感到非常害怕，經過診斷確定患有妥瑞氏症。 ==妥瑞兒 高偉航== 我會擔心說我在課堂上 會不會影響同學上課 或者是同學會怎麼看我 你愈去在意他 就愈嚴重 ==高偉航的媽媽 李誥艷== 我們的父母要夠堅強 陪伴 然後就是有問題面對了嘛 未來他要面臨的狀況很多 我們就是不放棄 根據妥瑞氏症協會資料，台灣大約有10萬名妥瑞患者，每200人就有1人，盛行率之高，但少有人了解妥瑞，也因此妥瑞孩子容易遭到誤解、不合理對待甚至霸凌。為了讓更多人認識妥瑞症，二年多來，長期從事妥瑞症行為治療的薛常威醫師，帶著妥瑞兒走進校園現身說法。 ==壢新醫院小兒科主任 薛常威== 我很希望這些妥瑞的大學生 成為一個種子教師 就是妥瑞大使 他以後可以到很多學校去演講 ==桃園大溪祥瑞國小校長 魏瑞汶== 可以忽略他們一些叫聲之類的 可以讓他們在這個環境當中 可以更自在快樂的學習 薛醫師指出，妥瑞兒的最大痛苦，不是來自身體動作和發出怪聲，而是旁人誤解和異樣眼光。除了希望更多人加入他們的行列，也決定繼續帶著他的種子隊，踏遍全台2600所小學，要讓更多人認識妥瑞症，也希望社會給妥瑞兒更友善的環境。 記者詹淑雲 桃園報導